HELP ACCELERATE RESEARCH FOR
Amyotrophic Lateral Sclerosis (Lou Gehrig’s Disease; ALS)
Study
Amyotrophic Lateral Sclerosis (Lou Gehrig's Disease; ALS) At-Home Research Study
Location: Nationwide
Compensation: $100
Length: 30-45 MINUTES
The goal of this research is to allow researchers to enhance our understanding of Amyotrophic Lateral Sclerosis (Lou Gehrig’s Disease; ALS), in support of developing new diagnostic and treatment options for patients living with the condition.
You can participate if you:
- Are 18 to 85 years of age
- Are diagnosed with Amyotrophic Lateral Sclerosis (Lou Gehrig’s Disease; ALS)
- Live in United States
You cannot participate if you:
- Are pregnant
- Have a known history of HIV, hepatitis, or other infectious diseases
- Experienced excess blood loss including blood donation defined as 250 mL in the last month or 500 mL in the last two months
How It Works
It’s a simple three-step process
Step 1: Tell us about yourself
Submit a health profile by answering basic questions about your medical history.
Step 2: See if you qualify
Speak with a research coordinator to learn more about what is required to participate.
Step 3: Participate from Home
Complete study requirements from Home with the help of our mobile health staff.
Frequently Asked Questions
You can withdraw from the study or decline participation at any time without providing a reason.
Your safety and privacy are our primary concerns. All private health information (PHI) provided to Sanguine is kept confidential and coded, so no one can identify you or connect you with your medical information. No samples we share with researchers contain any information that can directly identify you. We implement policies and procedures to protect your PHI in compliance with the law. If you want to learn more about your privacy rights, please see our privacy policy.
Yes. However, to participate in most studies, you will need to provide proof of your diagnosis. Even if you are not currently seeing a physician, you can still sign an authorization for Medical Record Release from your former physician that can serve as proof of diagnosis. Previous medical records can serve as proof of diagnosis.
We may ask you to sign a Release of Medical Records so that we can provide researchers with the data they need to conduct as comprehensive of a study as possible. Your de-identified medical information will help translate laboratory results from collected samples into clinical information that may be used to develop new therapies and/or diagnostics.
No. We collect blood and other samples from donors in order to provide scientists with quality samples for their research. We do not perform diagnostic tests.
