HELP ACCELERATE RESEARCH FOR

Retinitis Pigmentosa

Study

Retinitis Pigmentosa At-Home Research Study

location

Location: Nationwide

compensation

Compensation: $100

length

Length: 30 MINUTES

The goal of this research is to collect whole blood from participants diagnosed with X-Linked retinitis pigmentosa (XLRP) to investigate the disease-causing genes, and develop innovative therapies as an extension of an ongoing global study.

You may qualify if you:

  • Are 18 to 85 years of age
  • Have been diagnosed with X-linked retinitis pigmentosa (XLRP)
  • Have had a full genetic test completed
  • Live in the United States

You may not qualify if you:

  • Are pregnant or nursing
  • Have a known history of HIV, hepatitis, or other infectious diseases
  • Experienced excess blood loss including blood donation defined as 250 mL in the last month or 500 mL in the last two months

How It Works

It’s a simple three-step process
step-1

Step 1: Tell us about yourself

Submit a health profile by answering basic questions about your medical history.

step-2

Step 2: See if you qualify

Speak with a research coordinator to learn more about what is required to participate.

step-3

Step 3: Participate from Home

Complete study requirements from Home with the help of our mobile health staff.

Frequently Asked Questions

You can withdraw from the study or decline participation at any time for any reason.

All of our studies and staff are HIPAA compliant and follow all state and federal regulations. We keep your information confidential. Check out our privacy and protection policies to learn more.

Yes. However, to participate in most studies, you will need to provide proof of your diagnosis. Even if you are not currently seeing a physician, you can still sign an authorization for Medical Record Release from your former physician that can serve as proof of diagnosis. Previous medical records can serve as proof of diagnosis.

We may ask you to sign a Release of Medical Records so that we can provide researchers with the data they need to conduct as comprehensive of a study as possible. Your de­-identified medical information will help translate laboratory results from collected samples into clinical information that may be used to develop new therapies and/or diagnostics.

No. We collect blood and other samples from donors in order to provide scientists with quality samples for their research. We do not perform diagnostic tests.

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