Patient Stories & Testimonials

Patient Stories

Stories from Sanguine Research Participants Including Patients, Survivors, and Caregivers

Making Health About People

Warriors Who Inspire Us Everyday 

for the community

Charly’s Story: For The Community

Charly is a black man in his 30s and is one of 6 siblings. He is the only sibling with Sickle Cell Anemia. He has had the condition since birth but didn’t learn much about it until high school when he started getting leg ulcers. Charly loved basketball and had dreams to become…

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Fight On

Nikkia’s Story: Fight On

In 2007, Nikkia was experiencing joint pain, fatigue, blue fingers, and lethargy while working as a bank teller. She would visit doctors’ offices and the emergency room (ER), and medical professionals could not give her a diagnosis. She was told that perhaps she was catching a cold or a virus. Nikkia felt like…

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For My Son

Trinesha’s Story: For My Son

Trinesha is in her late 30s and is living with sickle cell disease (SCD). Trinesha has had a lonely journey with the disease. Though her brother has SCD as well, his symptoms are less severe, which makes Trinesha feel that he doesn’t understand her. Trinesha was raised by a single mom who had…

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