Events
PFE-001: A Novel Non-Covalent Modulator of Hemoglobin Improves Anemia and Reduces Sickling in a Mouse Model of Sickle Cell Disease
Kelly M. Knee, PhD, Senior Principal Scientist, Rare Disease Researcher Unit, Pfizer Sickle cell disease is a…
AI and Digital Health Accelerating Rare Disease Clinical Research Powered by Patients
Harsha Rajasimha, MS, PhD, Founder, Jeeva Informatics Solutions, Inc.; Founder and Chairman, IndoUSrare; Co-Director, Rare Diseases Systems Biology…
Navigating the Pandemic: A COVID-19 Discussion with the Infectious Disease Community
Over the past twenty years, the world has faced several infectious disease outbreaks including; Ebola, Influenza A (H1N1),…
Lessons Learned from being at the First Wave of the Covid-19 Epidemic in the US
Hilary Godwin, Ph.D., Dean, University of Washington School of Public Health and Professor in the Department of Environmental…
Gene Therapy for HD: Sorting Truth from Hype
Edith Pfister, Ph.D., Assistant Professor, University of Massachusetts Medical This talk will cover the basics of therapies designed…
Fox Insight: Driving Discovery with the Patient Voice
Patient reported outcomes (PRO) data complements traditional clinical research with scale & accessibility, as well as patient-centricity. The…
Steps to Reduce Missed Deadlines and Unnecessary Costs in Research Studies and Trials
High cost along with patient recruitment and retention pose major obstacles to conducting clinical trials in the U.S.…
How the Direct-to-Patient Approach can Streamline your Research Study and Trials
The research process can be an inconvenience and a burden for the patient test subject; currently over 40%…
Neutralizing Antibodies Against Pandemic Viruses
Over 30 years after the emergence of HIV-1, there is no effective vaccine, and AIDS remains an important…